Hi, I’m Rogier Koning and I’m asking for approval for my ADD data project called nobism. Nobism is a patient diary to collect real time data about symptoms and treatments. So basically any patient could use it to collect data.
This app is build so we as Clusterheadache patients can collect our own data for research.
By connecting to OpenHumans we as group create the option to backup our data and share it for research.
The nobism project is setup to do our own research. The app to ADD data is one side of the project. At the other side we advocate to get projects started to do our own research and get insight in our own data, disease development and treatment effectiveness.