CNBC new link - http://www.cnbc.com/2017/03/10/employers-could-demand-genetic-testing-under-congressional-bill.html
This story hit the news feeds yesterday. The Open Humans Project represents an organization comprised of the largest single collection of humans with completely open genomic data, available for anybody on the planet to peruse at their convenience. We all have our own motivations for making our data public, but the simple fact is that we are the world's leading voice in advocating for open access to genomic data. I have no qualms whatsoever about making a public statement of profound alarm that any legislation with the intent of compelling employees to be tested for the stated purposes of this legislation could be seriously considered by a congressional committee. I can't imagine in the remotest circumstances that this legislation has any chance of passage, but the fact that it could actually be proposed is at once alarming, bizarre and incredible. I think that we should all be carefully noting the activities of any congressman or senator that speaks up publicly in support of this measure. I don't know if this legislation would require that the vote of each congressional representative would be publicly registered if it comes to a vote, but I certainly hope so. Did the congresswoman who wrote and sponsored this bill imagine that no one would notice, or that there would be public support for the bill? What on earth was going through her mind in sponsoring such legislation?? How many of you in this forum know someone that you think would likely be in favor of allowing employers to demand compulsory genomic testing?? This legislation is outside the pale, and a very thinly veiled attempt by major employers to reduce their healthcare costs by culling employees with higher genetic risk profiles. If anyone wanted to come up with a way to stop cold what we have started here, this is it. Bizarre, incredible, absurd, outrageous, and ridiculous. I suppose that some of our congressional representatives think that we're just stupid. We'll see what they think of this legislation when they are kicking a can down the road after the next election.