With this message I ask for approval for the data request project nobism reports for Advocating
Project link: https://www.openhumans.org/direct-sharing/projects/on-site/nobism-reports-for-advocating/
Project website: https://nobism.com
This project can ONLY be joined if users are already member of the “nobism Ubiqum Cluster headache Project”
This project creates reports based on the personal data collected by the user.
This project is setup to give all advocates for Cluster headache materials to use to support their work in creating awareness or getting new research starting.
What will you share: We request access to the reports made by the “nobism Ubiqum Cluster headache Project”
What do we do with the reports: Reports will be made available for free download (nobism.com) to be used for publications, advocating work and other sharing, to promote the work we do as cluster headache group and create Awareness about Cluster Headaches.
If you stop sharing: If you stop sharing no new reports will be shared. Download links will be deleted from nobism.com. Reports that are shared already online, are in the public property and can’t be deleted anymore.
Anonymized reports: All reports will be anonymous.