Hi! I’m in the process of requesting data from LexisNexis to see how aggregators use consumer health data in their products without consent. The process for request is super easy and free:
I’m specifically wondering if anyone would like to try this with me and compare results we get. The goal here is to figure out if we get a transparent dataset when requesting health information, knowing that products like this exist:
The more we’re able to gather how tech platforms allow 3rd parties to harvest health info, the more we can protect ourselves so that research is done ethically with consent. LMK if anyone wants to explore this project with me!