My friend and colleague Jessica Morris, living with glioblastoma (GBM), founded a non-profit called OurBrainBank. We gather self-reported health indicators data from people with GBM and their carers.
Currently using a custom app, but looking at ways to make our data more valuable for research and the app/data itself more helpful for the people generating it.
I will start a discussion about GBM data collection, new to this and I don’t have a science background, so appreciate any help.
Had a meeting today with Bastian to introduce me to Open Humans, thank you Bastian!